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doi:10.22028/D291-40641
Title: | Patient empowerment for cancer patients through a novel ICT infrastructure |
Author(s): | Kondylakis, Haridimos Bucur, Anca Crico, Chiara Dong, Feng Graf, Norbert Hoffman, Stefan Koumakis, Lefteris Manenti, Alice Marias, Kostas Mazzocco, Ketti Pravettoni, Gabriella Renzi, Chiara Schera, Fatima Triberti, Stefano Tsiknakis, Manolis Kiefer, Stephan |
Language: | English |
Title: | Journal of Biomedical Informatics |
Volume: | 101 (2020) |
Publisher/Platform: | Elsevier |
Year of Publication: | 2019 |
Free key words: | Patient empowerment Psychoemotional monitoring Personal health system Cancer |
DDC notations: | 610 Medicine and health |
Publikation type: | Journal Article |
Abstract: | As a result of recent advances in cancer research and “precision medicine” approaches, i.e. the idea of treating each patient with the right drug at the right time, more and more cancer patients are being cured, or might have to cope with a life with cancer. For many people, cancer survival today means living with a complex and chronic condition. Surviving and living with or beyond cancer requires the long-term management of the disease, leading to a significant need for active rehabilitation of the patients. In this paper, we present a novel methodology employed in the iManageCancer project for cancer patient empowerment in which personal health systems, serious games, psychoemotional monitoring and other novel decision-support tools are combined into an integrated patient empowerment platform. We present in detail the ICT infrastructure developed and our evaluation with the involvement of cancer patients on two sites, a large-scale pilot for adults and a small-scale test for children. The evaluation showed mixed evidences on the improvement of patient empowerment, while ability to cope with cancer, including improvement in mood and resilience to cancer, increased for the participants of the adults′ pilot. |
DOI of the first publication: | 10.1016/j.jbi.2019.103342 |
URL of the first publication: | https://doi.org/10.1016/j.jbi.2019.103342 |
Link to this record: | urn:nbn:de:bsz:291--ds-406412 hdl:20.500.11880/36513 http://dx.doi.org/10.22028/D291-40641 |
ISSN: | 1532-0464 |
Date of registration: | 28-Sep-2023 |
Faculty: | M - Medizinische Fakultät |
Department: | M - Pädiatrie |
Professorship: | M - Prof. Dr. Norbert Graf |
Collections: | SciDok - Der Wissenschaftsserver der Universität des Saarlandes |
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