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Titel: Using Electronic Patient Reported Outcomes to Foster Palliative Cancer Care: The MyPal Approach
VerfasserIn: Maramis, C.
Karamanidou, C.
Schera, F.
Kiefer, S.
Koumakis, L.
Marias, K.
Hoffmann, S.
Parker, H.
Reston, J.
Payne, S.
Pospisilova, S.
Rosenquist, R.
Ghia, P.
Pontikoglou, C.
Sander, A.
Doubek, M.
Graf, N.
Ling, J.
Downing, J.
Pavi, E.
Koutkias, V.
Sprache: Englisch
Titel: 2019 IEEE 19th International Conference on Bioinformatics and Bioengineering : BIBE 2019 : Proceedings : 28-30 October 2019, Athens, Greece
Seiten: 405-409
Verlag/Plattform: IEEE
Erscheinungsjahr: 2019
Freie Schlagwörter: palliative care
supportive care
cancer
patient reported outcome (PRO)
electronic PRO (ePRO)
eHealth
mHealth
DDC-Sachgruppe: 610 Medizin, Gesundheit
Dokumenttyp: Konferenzbeitrag (in einem Konferenzband / InProceedings erschienener Beitrag)
Abstract: Palliative care is offered along with primary treatment to improve the quality of life of the patient by relieving the symptoms and stress of a serious illness such as cancer. As per modern definitions, palliative care is appropriate at any age and at any stage of the illness, regardless of the eventual outcome. Patient-reported outcomes (PRO), i.e., health status measurements reported directly by the patients or their proxies, and especially their availability in electronic form (ePROs), are gradually gaining popularity as building blocks of innovative palliative care interventions. This paper presents MyPal, an EC-funded collaborative research project that aims to exploit advanced eHealth technologies to develop and evaluate two novel ePRO-based general palliative care interventions for cancer patients. In particular, the paper presents: (1) a short overview of MyPal; (2) the target populations, i.e., adults suffering from chronic lymphocytic leukemia (CLL) or myelodysplastic syndromes (MDS), and children with solid or hematologic malignancies; (3) the ePRO-based interventions being designed for the target populations, (4) the eHealth platform for delivering the interventions under development, and (5) the international, multi-center clinical studies to be conducted for assessing these interventions, i.e., a randomized controlled trial (RCT) and an observational study for adults and children, respectively.
DOI der Erstveröffentlichung: 10.1109/BIBE.2019.00079
URL der Erstveröffentlichung: https://ieeexplore.ieee.org/document/8941994
Link zu diesem Datensatz: urn:nbn:de:bsz:291--ds-410273
hdl:20.500.11880/36819
http://dx.doi.org/10.22028/D291-41027
ISBN: 978-1-7281-4617-1
Datum des Eintrags: 10-Nov-2023
Fakultät: M - Medizinische Fakultät
Fachrichtung: M - Pädiatrie
Professur: M - Prof. Dr. Norbert Graf
Sammlung:SciDok - Der Wissenschaftsserver der Universität des Saarlandes

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